Sunday, November 4, 2012

From Criminal Idea to IDEA: The Evolution of the Treatment of Individuals with Disabilities


It was in 1749 that D. Diderot languished in a Parisian prison for almost 5 months for the crime a publishing a radical new notion. Specifically, in his publication titled, Lettre sur les aveugles รก l’usage de ceux qui voient, or “Letter on the Blind for the Use of Those Who See,” the criminal act was the allegation that those French citizens without sight may in fact be able to lead normal, productive lives (Ally Bacon, 2010). It is a testament to the progress of human society in its recognition and treatment of persons with disabilities, that today their advocates are no longer deemed criminally dangerous. To the contrary, they now represent a powerful and influential component of the US education system, and serve more than 6 million children with disabilities in the US every year (NICHCY, 2012). While decades once passed between major innovations and improvements in special education, the 20thand 21st centuries have seen a near exponential growth and multiplication of services, laws, and integration of the disabled with the larger community (Ally Bacon, 2010).

            The cornerstone of US policy regarding special education for individuals with disabilities is the Individuals with Disabilities Education Act [IDEA].  Initially passed by Congress in 1975, the law revolutionized the treatment of disabled students in US public schools, and established a host of news rights, expectations, and parameters to meet their specific needs.  Prior to its implementation, US schools serviced only ~20% of students with disabilities (USOSEP).  Many others – for instance, more than 200,000 individuals as of 1967 – were housed in state institutions, “many of [which…] provided only minimal food, clothing, and shelter” (USOSEP).  This nightmarish reality was exacerbated by the fact that, by and large, such facilities existed merely accommodate and cordon off those deemed “retarded,” instead of “assess[ing], educat[ing], and rehabilitat[ing]” their charges (USOSEP).  Additionally, another 3.5 million children were ostensibly in school, but were in fact not given “adequate services” and in actuality merely “warehoused” in segregated facilities (NCD, 2000). However, with the gradually increasing public awareness of the dismal realities of these supposedly humanitarian facilities, it became more and more obvious that fundamental legal change needed to occur in order to protect this vulnerable segment of the population.  In 1972, in Mills vs. Washington D.C. Board of Education, and Pennsylvania Association for Retarded Citizens [PARC] vs. Commonwealth of Pennsylvania, the federal courts sided with advocates for the disabled and ordered both the Commonwealth of Pennsylvania and the District of Columbia to “provide a free, appropriate education to all students with disabilities [and educate them] in the same schools as students without disabilities” (Turnbull, Turnbull, and Wehmeyer, 2010, p. 9).

            Realizing the need a national policy reflecting these rulings, in 1975 Congress passed Public Law 94-142 (then known as “The Education for All Handicapped Children Act”), stipulating that all children with disabilities were to have equal access to publically funded education, and giving those schools the resources they required to meet that end goal (Cheadle, 1987). This law extended legal protection to students age six to eighteen and, though it was a successful first step, it became apparent over the following two decades that additional protections were necessary.  As such, the law – subsequently known as the Individuals with Disabilities Education Act [IDEA] – was amended and expanded in 1990.  This amendment, known as Part B, expanded the law’s guarantees to down to children as young as three, and as old as twenty-one (Turnbull, Turnbull, and Wehmeyer, 2010, p. 9).  In a reflection of the evolving understanding of the times, the language and focus of IDEA as compared to its predecessor was far more centered on the individual rather than the disabling condition, as evidenced by its introduction of the Individualized Education Plan [IEP] (p. 42-43).

            The No Child Left Behind Act of 2001 [NCLB] instituted a number of new provisions and policies regarding students with disabilities and their right to quality education.  Most significantly, NCLB emphasized the importance of assessments for students with disabilities, and of providing incentives for schools to demonstrate continuing progress in meeting their individuated needs (USDoE, 2007, “No Child”).  In 2004 (rat. 2006), IDEA was reauthorized and amended with the Individuals with Disabilities Education Improvement Act of 2004 [IDEA 2004], with several key changes.  The provisions were once again expanded to now include preschool aged children with disabilities (0-3), and to better align with the requirements of NCLB.  These alignments included: an agreement on the necessity and definition of “highly qualified teachers,” the establishment of both goals and substantive assessments of progress toward said goals for students with disabilities, and that, while such goals/assessments may be modified by a states, they must still meet the minimum benchmarks put forth by standardized assessments (USDoE, 2007, “Alignment”).

            In current law, eligibility for special education programs as defined by IDEA hinges on a child being shown to fall into a recognized disability category.  The most common categories are: specific learning disabilities (43%), speech or language impairment (19%), intellectual disabilities (8%), and emotional or behavioral disorders (7%) (Turnbull, Turnbull, and Wehmeyer, 2010, p. 6).  Students served by special education programs must also demonstrate that their disability renders them unable to optimally learn in a normal classroom environment unassisted.  IDEA guarantees students with disabilities and their families that no student in need will be excluded (“zero reject”), that there will be an evaluation of their disability free from prejudice or discrimination, that the student will receive an appropriate education tailored to their individual needs, that said education will be conducted in as least restrictive and segregated environment as possible, and that both parents and students have the right to collaborate and influence the design and execution of their own educational process (p. 11-12). 

The U.S. and its public schools have come a long way in just a few decades, and are full committed to the idea that all students deserve and should expect a full, complete, and equal education.  As both technologies and expectations shift in the coming decades, it is very likely that the principles and requirements set forth in IDEA will need to be revised again.  But that revision process will likely be relatively minimal, as there is already a very supportive and comprehensive system in place for students with disabilities and their families.

Resources

Ally Bacon Interactive Timeline (2010). Teaching students with special needs in inclusive settings. Retrieved from http://wps.ablongman.com/wps/media/objects/4549/4658915/timeline.htm on 11/04/12.

Cheadle, B. (1987). “PL-94-142: What Does it Really Say?” in Winter Reflections (Vol. 6, No. 1).  Retrieved from https://nfb.org/images/nfb/publications/fr/fr6/issue1/f060113.html on 11/04/12.

National Council on Disability (2000).  “Back to School on Civil Rights.”  Retrieved from http://www.ncd.gov/publications/2000/Jan252000 on 11/04/12.

National Dissemination Center for Children with Disabilities (2010).  “Children (3 to 22).”  Retrieved from http://nichcy.org/schoolage on 11/04/12.

Turnbull, A., Turnbull, R., & Wehmeyer, M. (2010). Exceptional lives: Special education in today's schools (with MyEducationLab) (6th ed). Saddle River, NJ: Pearson Education, Inc.

U.S. Department of Education (2007).  “No Child Left Behind: A Desktop Reference.”  Retrieved from http://www2.ed.gov/admins/lead/account/nclbreference/index.html on 11/04/12.

U.S. Department of Education (2007). “Topic: Alignment with the No Child Left Behind Act.” Retrieved from http://idea.ed.gov/explore/view/p/%2Croot%2Cdynamic%2CTopicalBrief%2C3%2C on 11/04/12.


U.S. Office of Special Education Programs.  “History: 25 Years of Progress in Educating Children With Disabilities Through IDEA.”  Retrieved from http://www2.ed.gov/policy/speced/leg/idea/history.pdf on 11/04/12.

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